Building on 30 years of research, the TCARE team knows:
- The most direct measure of the caregiving experience – caregiver stress – is multidimensional with a wide range of factors affecting different types of caregivers’ burden.
- There is great diversity among caregivers in terms of the type and quantity of tasks they undertake, the duration of time over which they serve their role, the costs they incur, and the benefits caregivers perceive as a consequence of their roles.
- Patterns of services used by caregivers varies significantly. Caregivers will not use a service unless they understand its benefits and how it will help them in their caregiving journey. The perception of need is influenced by characteristics of the caregiver, care receiver, and providers of support services.